The aftermath of AFM: Rehabilitation, patients and family experiences

1:00-1:05         Introduction  

1:05-1:30         Acute rehabilitation:  ICU and transition to inpatient acute rehabilitation-  Dr. Travis Edmiston, Kennedy Krieger Institute & Johns Hopkins University School of Medicine, Baltimore, MD

1:30-1:55         The first year:  Inpatient rehabilitation and transition to home and outpatient rehabilitation.   Janet Dean,  MS, RN, CRRN, CRNP, Kennedy Krieger Institute, Baltimore, MD

2:10-2:30        Long-term rehabilitation:  Long-term outcomes and management of secondary consequences

TBA

2:30-2:50        Respiratory and ventilatory rehabilitation in AFM. Dr. Michelle Melicosta, Kennedy Krieger Institute, Baltimore, MD

2:50-3:10        Orthopedic complications and management in spinal cord disorders and AFM. Dr. Paul D. Sponseller, Johns Hopkins School of Medicine, Baltimore, MD

3:10-3:30        Panel discussion with families and patients with AFM